Thirty years ago, I was diagnosed with Friedreich’s ataxia, an incurable neuromuscular, and often life-shortening, disease, which will eventually incapacitate me. Since 1990, I have lost the ability to walk and I now use a wheelchair. Friedreich’s ataxia causes various forms of heart disease, including heart enlargement and cardiac failure.
As a result, the end of my life could involve great suffering. It’s why I have supported the bipartisan Massachusetts End of Life Options Act since it was originally introduced, in 2011. It would give me the option to peacefully end my suffering if it becomes intolerable as I near death…
If this bill becomes law and my condition becomes terminal, I don’t know if I would use this end-of-life care option. But I do know that I want the right to make that decision…
Compassion & Choices
Media Contacts
Michael Cavaiola
National Director of Marketing & Communications
[email protected]
Phone: (480) 622 4427
Patricia A. González-Portillo
Senior National Latino Media Director
[email protected]
(323) 819 0310
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Etna, NH 03750
