Compassion & Choices is proud to offer a host of tools and resources to help you and your loved ones Finish Strong by planning for an end-of-life experience that matches the life we’ve enjoyed—defined by love, purpose and agency. “Tools to Finish Strong” specifically addresses planning your end-of-life care at every stage, even after a dementia diagnosis.
Finish Strong: Putting YOUR Priorities First at Life’s End by President of Compassion & Choices Barbara Coombs Lee is the guide to achieving the positive end-of-life experience you want and deserve.
Dementia Values & Priorities Tool
Document your wishes in the event of a dementia diagnosis.
Take control of your future care by creating a customized Dementia Addendum for your Advance Directive.
Dementia is a devastating, incurable disease currently affecting almost 6 million people living in America. One in three Americans will die with dementia, and by 2060 the number of people affected by dementia is expected to soar to 15 million people.
While it’s not possible to accurately predict whether or not you or a loved one will be diagnosed with dementia, with proper planning and a strong healthcare advocate, it is possible to avoid needless suffering at the end of life. Compassion & Choices has sought to help aid in this process with our new tools: The Dementia Values & Priorities Tool and the Dementia Decoder.
The Dementia Values & Priorities Tool helps patients stay in control of their lives and care in the early stages of a dementia diagnosis. Patients will be able to provide a set of clear-cut care instructions to their loved ones, outlining their intentions through a personalized care plan called a Dementia Healthcare Directive, which adds to a standard advance directive, and gives loved ones a way to implement critical, informed decisions on the patient’s behalf free of guilt.
The Dementia Decoder empowers the individual to indicate the current status of their dementia diagnosis, specify what they hope to learn and accomplish from an upcoming clinical appointment and customize that experience using a list of helpful questions. Responses to these questions can then be printed or emailed to a provider or family member to guide important discussions during high-stakes medical appointments.
- Learn more about the seven stages of dementia here.
- Learn more about how to interview a hospice here.
- Learn more about Voluntary Stopping Eating and Drinking (VSED) here.
|These resources are a small sample of what’s available to you. For a comprehensive list, please visit the Plan Your Care Resource Center for more information.|