Alzheimer’s Association Partners With Compassion & Choices to Improve End-of-Life Care for Those With Dementia

The hope is to engage communities nationwide to raise awareness of all forms of dementia and to provide care, support and information about advance care planning for the people impacted.

The Alzheimer’s Association, the nation’s leading voluntary health organization in Alzheimer's and other dementia care, support and research, has forged a new partnership with Compassion & Choices to improve end-of-life care for those living with dementia.

The collaboration’s goal is to engage communities across the United States to raise concern about and awareness of the prevalence of Alzheimer’s and other forms of dementia, connect people living with dementia and their loved ones to resources and support, and share the steps everyone can take in the event of an early-stage dementia diagnosis to ensure the care they receive is aligned with their personal health goals, values and priorities.

One in 9 people over 65 live with Alzheimer’s, and 1 in 3 seniors die with Alzheimer’s or another dementia. This new partnership will focus on reaching populations that haven’t traditionally had access to a supportive, culturally competent and engaged healthcare system, especially in the Black, Latino, Asian American Native Hawaiian Pacific Islander (AANHPI) and LGBTQ communities.

The organizations will collaborate on national webinars, local community events, efforts to include underrepresented communities in research trials and surveys, sharing data, organizing conferences and more. “The Alzheimer’s Association wants to include all the communities we do outreach to,” explains National Director of Community Engagement Brandi Alexander. “It's an intentional, inclusive initiative that will allow us to cross-reference each other’s consultation programs and other work.”

“Dementia touches nearly every American, whether it’s an individual or their loved one living with the diagnosis,” said Compassion & Choices President and CEO Kim Callinan. “We are committed to transforming the way people live and die with dementia by connecting them with the information, tools and resources they need to take control of their care and claim their voice before they are unable to speak for themselves. We are so excited to begin this partnership with the Alzheimer’s Association to enable both organizations to reach even more people, especially in historically marginalized communities.”